Privacy Policy - Rehabilitation Program for mothers with Muscular Dystrophy children

1. Terms and Definitions

The following definitions are meant to give a better understanding of the terms we use in the Privacy Policy below.

When we say “we”, “us”, or “ours” we are referring to Awaken Potential or its legally owned properties like the website https://www.clementineynna.org/. We provide muscular dystrophy services, referred to as “Services” and in some cases, we use Personal Information to help us conduct our normal business operations.

“Personal Information” means any information that identifies or can be used to identify a person, directly or indirectly, including, but not limited to, first and last name, date of birth, e-mail address, gender, occupation or other demographic information.

Website Visitor/User

Website Visitor/User is every person who loads our websites in their browser or visits different sections or pages of the website (either by entering the URL or following a hyperlink from another website or source).
Type of data that may be processed: cookies stored in the user’s browser; City or country location based on the IP address of the device, which is part of the data that each website receives; Statistical data on the users’ interactions on the website; Data on the browser or device used to browse the website.
Purpose of use: Providing basic and support functions for the proper and efficient functioning of the website; Statistical reports on how and when the website is used; Providing necessary conditions for using the services of third-party marketing platforms.
Storage Lifespan: Until the expiration of each cookie carrying the corresponding information (from one browsing session to up to a year) or until the user deletes the cookie directly from its browser and/or device.
Legal reason: Giving consent to the cookie consent form and the related Cookies Policy.

E-mail Subscriber

E-mail subscriber is each person who has consented to receive regular, unprompted e-mails from us. The e-mail may be sent via third-party e-mail services.
Type of data that may be processed: Names, E-mail address, and Subscription preferences.
Purpose of use: Providing the basis for serving e-mail newsletters and updates for which the person has given consent.
Storage lifespan: Up to one month after an unsubscription has occurred.
Legal reason: Consent for receiving an e-mail newsletter

We offer and promote the Services through our website https://www.clementineynna.org/, e-mail campaigns and social media channels. This Privacy Policy applies to this specific website, as well as any other sites or social media channels owned or operated by us. While providing the Services, and as described in more detail below, we may collect Personal Information about our Users and Subscribers. We collect such Personal Information for the purposes of conducting our normal business operations.

2. Changes

We will update this Privacy Policy from time to time to reflect new regulatory requirements or changes in the way we collect Personal Information. The date located at the end of this Privacy Policy represents the most recent version of it.

All updates are effective immediately upon notice, which may be given by including, but not limited to, by posting a new version of this Privacy Policy. Your continued use of the website signifies your continuing consent to be bound by this Privacy Policy. Our electronically or otherwise properly stored copies of this Privacy Policy are each deemed to be the true, complete, valid, authentic, and enforceable copy of the version of this Privacy Policy which was in effect on each respective date you visited the Website.

3. Scope

This Privacy Policy is an inseparable part of our Cookies Policy.

Your Information

Where we require your consent to process your Personal Information, we will ask for your consent to the collection, use, and disclosure of your Personal Information as described further below.

4. Information We Collect:

Information you voluntarily provide to us: When you send us an e-mail or a message or contact us in any other way, you are voluntarily giving us information, some of which is collected. That information may include either your name, e-mail address, phone number, etc. By giving us this information, you consent to this information being collected, used, disclosed, transferred and stored by us for future reference in the history of our communication.
The statistical information we collect automatically: When you browse our websites, we may collect information about your visit and the way you browsed our websites. That information may include your operating system, your browser ID, your browsing activity, and other information about how you interacted with our websites. The above information is gathered as statistical data and is anonymous.
Information we store as a contact list: When you communicate with us via the contact forms on our website or subscribe to a newsletter, we will store Personal Information as a record of our communication. This information may include name, e-mail, city, e-mail subscriber preferences. The above information is gathered when explicit consent is given within the corresponding forms.
Information from your use of the Service and/or Websites: If you are in our contact list we may receive information about how and when you use the Services, website or interact with our e-mail campaigns, store it in log files and link it to other information we collect about you. This information may include, for example, the time, date and actions you have taken within the website or an e-mail campaign. This information helps us to improve our Services, website and the content of our e-mail campaigns, for both you and for all of our users.
Cookies and tracking: We and our partners may use various technologies to collect and store information when you use our websites, such as pixels and web beacons, to analyze trends, administer the website, track users’ movements around the website, serve targeted advertisements, and gather demographic information about our user base. Users can control the use of cookies at the individual browser level. For more information about our use of cookies and other tracking technologies, and how to opt-out of the use of cookies, please refer to our Cookies Policy.
Web beacons: The third-party e-mail service providers we use implement web beacons in our e-mails. When we send e-mails to an E-mail Subscriber, we track who opened the e-mails and who clicked the links. This allows us to measure the performance of our e-mail campaigns.

5. Your rights

If we collected or stored your Personal Information, you have the following rights you can exercise by contacting us at contact@clementineynna.org

The right of access – you may ask us what Personal Information we have on you and if we do, to access that information.
The right to rectification – If you find your Personal Information to be incorrect or incomplete, you may request it to be changed accordingly.
The right to erasure – (right to be forgotten): Under special circumstances (such as your Personal Information being misused or you have withdrawn your consent for its use or storage and there is no further reason for using that data) you may contact us to erase that Personal Information.
The right to restrict processing – Under special circumstances where you have doubts about the correctness of your Personal Information or you disagree with the legitimate use of your information you may request from us to not use that information until a solution is found.
The right to object – If you have doubts about the legitimate purpose for using your Personal Information, you may object against such use, presenting the arguments for your suspicions.
The right to data portability – If your Personal Information is collected with your consent via automated methods, you may ask us to send you your data in a machine-readable format in order to transfer them to another data controller.

6. Use and Disclosure of Personal Information

We may use and disclose Personal Information only for the following purposes:

To promote important milestones from our company or the use of our Services via e-mail campaigns. You can stop receiving our e-mails from us by following the unsubscribe instructions included in every e-mail we send.
To send you alert messages. For example, we may inform you of temporary or permanent changes to our Services, such as new releases, planned outages, abuse warnings, and changes to our Privacy Policy.
To protect the rights and safety of our partners as well as our own.
To meet legal requirements and other appropriate legal mechanisms.
To provide information to representatives and advisors, including attorneys and accountants, to help us comply with legal, accounting, or security requirements.
To respond to lawful requests by public authorities, including to meet national security or law enforcement requirements.
To provide support to the Services we offer. This includes our use of the data that our clients, users, and subscribers provide us to communicate with them efficiently. This also includes, for example, aggregating information from your previous communication with us and the use of the Service or websites. This might also include sharing your information or the information you provide us with third-party services such as Client relationship management software. Our third-party service providers fully comply with the GDPR directives and are certified under the EU-US Privacy Shield

7. Public Information and Third-Party Websites

Social media platforms and widgets. Our websites include some social media features (like the Facebook Share button). In order to function properly they may set a cookie and in order to use them, you may share with them information about your IP address and which page you are visiting on our Websites. We also maintain a presence on social media platforms, including Facebook. Any information or materials you submit to us via a social media platform is done at your own risk without any expectation of privacy. Your interactions with those platforms are governed by the privacy policies of the companies that provide them.
Links to third-party websites. Some page sections or blog articles on our Websites may include links to other websites. Their privacy policies will be different from ours. If you submit Personal Information to any of those sites, your information is governed by their privacy policies.

8. Third Parties

We may disclose Personal Information to the following third parties for the purposes described in this policy:

Service Providers. Sometimes, we share your information with our third-party Service Providers, who help us provide and support our Services. We work with third-parties that fully comply with the GDPR directives and are certified under the EU-US Privacy Shield.
Advertising partners. We may partner with third-party advertising networks to serve our advertising on other sites (like Facebook or Google) and may share Personal Information with them for this purpose. We and our third-party partners may use cookies and other tracking technologies, such as pixels and web beacons, to gather information about your activities on our websites to provide you with targeted advertising based on your browsing activities and interests. For more information about cookies and other tracking technologies, please see our Cookie Policy.

9. Notice of Breach of Security

In case of a security breach affecting your data then we will notify you personally or release a general statement with details. Later we will also release a report on the actions we took.

10. Safeguarding Your Information

We take reasonable measures to protect Personal Information from loss, misuse and unauthorized access taking into account the risks involved in the processing of Personal Information.

11. Access

You have the right to individual access to Personal Information we might have collected from you. We can provide that information to you within 30 days of the request. You can request to access, correct, amend or delete the information we hold about you by writing to us at contact@clementineynna.org. Unless it is prohibited by law, upon request from you, we will remove any Personal Information we might have collected from you.

If you have questions or if you want to delete or change any Personal Information we hold, or you have a concern about how we have handled any privacy matter, please use our e-mail contact@clementineynna.org to send us a message.

Page Last Update: 15 March 2023

Through My Muscular Dystrophy No More 4X program